Wednesday, May 28, 2008

One day of many

Today was Ehco and Cath day. Sebastian slept for most of it with a little help from drugs and anaesthesia. He is doing well a little sore and tired. He still is very angry about IV's, I think the 11 pokes day scared him for life. Luckily they got it in on the second try. The echo didn't show anything different, the cath didn't either really but the Dr's said that they found more blood going to the heart then what they wanted and this could explain the sweating and weight loss. Just too much blood for the heart to handle. Tomorrow will be a little scary. We are Dr's Spray's first patient of the day... very nice. Hopefully it will be over in about 2-3 hours depending on what the Dr does. It will be the Glenn or a Hemi Fontan. Stephen wants the Hemi go figure. The worst is the scar tissue and getting past all that takes the longest part of the surgery. They said he could be 2 different colors after the surgery one color on top another on bottom. He most likely will make headaches due to the different pressure in the head hopefully that won't last long. Just to catch up everyone. The first surgery the Norwood gives time for the lungs to develop. The second surgery, this one routes the blood from the top of the body to go straight to the lungs and the third routes the blood from the lower part of the body straight to the lungs. The nurse said he could be circumcised and get another hearing test because he keeps failing those while we are out he so the poor little guy will have a long rough road ahead.

2 comments:

Burns Family said...

Our thoughts and prayers are with the little guy, and also you guys! He is a strong little guy and will do great! We love you guys!

Debora said...

I know you are so relieved the surgery is over!! Glad to hear he is doing well. Talk to you soon.